If you have questions about pediatric heart disease, joining a clinical study or something you read on this site, feel free to contact the National Heart, Lung and Blood Institute:

Victoria Pemberton, RNC, MS, CCRC
Pediatric Heart Network Coordinator
National Heart, Lung, and Blood Institute

To find a participating site near you, please select from the list below:

Belgium

Ghent University
Ghent, Flanders, Belgium
PI: Dr. Bart Loeys
Coordinator: Sylvia De Nobele
Phone Number: 32-9-332.63.39
E-mail address: sylvia.denobele@ugent.be
Marfan

Canada

Hospital For Sick Children
Toronto, Ontario, Canada
PI: Dr. Brian McCrindle
Coordinator: Liz Radojewski, RN
Phone Number: 1-866-613-7778
Email: elizabeth.radojewski@sickkids.ca
SVR Extension, Fontan Follow-up Study and Marfan

Toronto General Hospital - UHN
Toronto, Ontario, Canada
PI: Dr. Tim Bradley
Coordinator: Liz Radojewski, RN
Phone Number: 1-866-613-7778
Email: elizabeth.radojewski@sickkids.ca
Marfan

California

Cedars-Sinai Medical Center
Los Angeles, CA
PI: Dr. David Rimoin
Coordinator: Mitchel Pariani MS
Phone Number: 310-423-9861
E-mail address: Mitchel.Pariani@cshs.org
Marfan

Children's Hospital of Los Angeles
Los Angeles, CA
PI: Drs. Alan Lewis and Vaughn Starnes
Coordinator: Morella Menicucci BA, BS, FMG
Phone Number: 323-361-7299
E-mail Address: mmenicucci@chla,usc.edu
SVR Extension

Heart Institute, Rady Children's Hospital - UCSD School of Medicine
San Diego, CA
PI: Dr. Paul Grossfeld
Coordinator: Terri McLees-Palinkas MS, CCRC
Phone Number: 858-966-8066
E-mail address: tmclees@rchsd.org
Marfan

Stanford University
Stanford, CA
PI: Dr. David Liang
Coordinator: Elizabeth Merkel, RN
Phone Number: 650-736-0644
E-mail address: merkel@stanford.edu
Marfan

Delaware

Nemours Cardiac Center
Wilmington, DE
PI: Christian Pizarro, MD
Coordinator: Carol Prospero
Phone Number: 302-651-6686
E-mail address: cprosper@nemours.org
SVR Extension

Florida

Congenital Heart Institute of Florida
Tampa / St. Petersburg, FL
PI: Drs. James Huhta and Jeffrey P. Jacobs
Coordinator: Tina M. Merola, RN
Phone Number: 727-542-2392
E-mail address: merolat@heartsurgery-csa.com
SVR Extension

Georgia

Emory University
Atlanta, GA
PI: Dr. Kirk R. Kanter
Coordinator : Christine Spainhour, RN, RRT
Phone Number: 404-785-0421
E-mail address: Christine.Spainhour@choa.org
SVR Extension

Illinois

Children's Memorial Hospital Chicago - Northwestern University
Chicago, IL
PI: Dr. Luciana Young
Coordinator: Megan Domenico
Phone Number: 773-880-8331
E-mail address: mdomenico@childrensmemorial.org
Marfan

Maryland

National Heart, Lung, and Blood Institute
Bethesda, MD
Program Officer: Dr. Gail Pearson
Deputy Project Officer: Victoria Pemberton, RN, MS, CCRC
Phone Number: 301-435-0510
E-mail address: pembertonv@nhlbi.nih.gov

Johns Hopkins University
Baltimore, MD
PI: Dr. Hal Dietz
Coordinator: Mary Rykiel, BSN
Phone Number: 410-502-2014
E-mail address: mrykiel1@jhmi.edu
Marfan

Massachusetts

Children's Hospital Boston
Boston, MA
PI: Dr. Jane Newburger
Coordinator: Carolyn Dunbar-Masterson, RN, BSN
Phone Number: 617-355-4201
E-mail address: Carolyn.dunbar-masterson@cardio.chboston.org
SVR Extension, Fontan Follow-up Study and Marfan

New England Research Institutes
Watertown, MA
PI: Dr. Lynn Sleeper
PI: Dr. Sharon Tennstedt
Coordinator: Beverly Slayton
Phone Number: 617-923-7747 X410
E-mail address: bslayton@neriscience.com

Michigan

University of Michigan
Ann Arbor, MI
PI: Dr. Rick Ohye
Coordinator: Cheryl Nowak RN, CCRC
Phone Number: 734-615-1903
E-mail address: nowakc@umich.edu
SVR Extension

Minnesota

Children's Hospital & Clinic
St. Paul, MN
PI: Dr. Mary Ella Pierpont
Coordinator: Erin Olson
Phone Number: 612-813-7737
E-mail address: erin.olson@childrensmn.org
Marfan

Missouri

Washington University in St. Louis
St. Louis, MO
PI: Dr. Angela Sharkey
Coordinator: Cheryl Rainey
Phone Number: 314-454-6147
E-mail address: rainey_c@kids.wustl.edu
Marfan

New York

Children's Hospital of New York
New York, NY
PI Name: Dr. William Hellenbrand
Coordinator: Rosalind Korsin, RN
Phone Number: 212-342-0524
E-mail address: rk271@columbia.edu
SVR Extension, Fontan Follow-up Study and Marfan

Mt. Sinai Hospital
New York, NY
PI: Dr. Bruce Gelb
Coordinator: Tejani Mendiz-Ramdeen, MS
Phone Number: 212-241-6012
E-mail address: Tejani.Mendiz-Ramdeen@mssm.edu
Marfan

New York Presbyterian Hospital/ Weill Cornell Medical Center
New York, NY
PI Name: Drs. Mary Roman and Dick Devereux
Coordinator: Rosalind Korsin, RN
Phone Number: 212-342-0524
E-mail address: rk271@columbia.edu
Marfan

North Carolina

Duke University
Durham, NC
PI: Dr. Jennifer Li
Coordinator: Ming Xu, RN, MSN
Phone Number: 919-668-6352
E-mail address: mingfen.xu@duke.edu
SVR Extension, Fontan Follow-up Study and Marfan

Eastern Carolina Univeristy
Greenville, NC
PI: Dr. Charlie Sang
Coordinator: Lori Jo Sutton, AAS, CCRC
Phone Number: 252-744-2161
E-mail address: suttonlo@ecu.edu
SVR Extension and Marfan

Wake Forest University
Winston-Salem, NC
PI: Dr. Wesley Covitz
Coordinator: Kari Crawford, MS, APRN, BC, CPNP-AC
Phone Number: 336-713-2228
E-mail address: kcrawfor@wfubmc.edu
SVR Extension and Marfan

Ohio

Cincinnati Children's Hospital
Cincinnati, OH
PI: Dr. Woody Benson
Coordinators: Michelle S. Hamstra, MS & Kathryn M. Hogan, MS
Phone Number: 513-803-1153
E-mail address: CardiologyResearchTeam@cchmc.org
SVR Extension and Marfan

Pennsylvania

Children's Hospital of Philadelphia
Philadelphia, PA
PI: Dr. Victoria Vetter
Coordinator: Sandra Dillulo RN, BSN
Phone Number: 267-426-9627
E-mail address: dilullos@email.chop.edu
SVR Extension, Fontan Follow-up Study and Marfan

Children's Hospital of Pittsburgh
Pittsburgh, PA
PI: Dr. Steven Webber
Coordinator: Kevin Stiegler RN, CRC
Phone Number: 412-692-6516
E-mail address: kevin.stiegler@chp.edu
Marfan

University of Pennsylvania
Philadelphia, PA
PI: Dr. Reed Pyeritz
Coordinator: Sandra Dillulo RN, BSN
Phone Number: 267-426-9627
E-mail address: dilullos@email.chop.edu
Marfan

South Carolina

Medical University of South Carolina
Charleston, SC
PI: Dr. J. Philip Saul
Coordinator: Patricia Infinger, CCRP
Phone: 843-792-7857
E-mail: infingep@musc.edu
SVR Extension, Fontan Follow-up Study and Marfan

Tennessee

Vanderbilt University Medical Center - Monroe Carell Jr Children's Hospital
Nashville, TN
PI: Dr. Larry Markham
Coordinator: Cheryl Kinnard RN, CCRC
Phone Number: 615-343-2880
E-mail address: cheryl.kinnard@vanderbilt.edu
Marfan

Texas

Texas Children's Hospital
Houston, TX
PI: Dr. Jeff Towbin
Coordinator: Hugo Martinez, MD
Phone Number: 832-826-5667
E-mail address: hrmartin@bcm.edu
Marfan

Utah

Primary Children's Medical Center
Salt Lake City, Utah
PI: Dr. L. LuAnn Minich
Coordinator: Marian Shearrow
Phone Number: 801-662-5487
E-mail address: Marian.Shearrow@intermountainmail.org
Fontan Follow-up Study and Marfan

Washington

Children's Hospital and Regional Medical Center Division of Cardiology, Children's Heart Center
Seattle, WA
PI: Dr. Mark Lewin
Coordinator: Amy Payne
Phone Number: 206-987-5708
E-mail address: amy.payne@seattlechildrens.org
Marfan

Wisconsin

Children's Hospital of Wisconsin
Milwaukee, WI
PI: Dr. Nancy Ghanayem
Coordinator: Lisa Young-Borkowski, RN
Phone Number: 414-266-7593
E-mail address: lyoung-borkowski@chw.org
SVR Extension